Watch this 1 minute long video on our story by clicking on the video below! Granted $422K to GM-1 Gene Therapy Research Connected with families affected by GM-1 from around the world! Fundraising and Awareness: Launched GoFundMe campaign Created www.sweetiris.org,
In 2015, the Cure GM1 Foundation granted $422K towards GM-1 Gangliosidosis intravenous gene therapy research being conducted by at UMass Medical School and Auburn University. Additional funds raised in 2015 are being saved for future grants and fundraising. Linked here are
We honor and remember all the children whose battle with GM-1 Gangliosidosis ended this year. This movie includes only the children whose parents provided photos. Unfortunately, GM-1 affects many more. Every life matters: Charlie, Fiona, Hugo, Joe, Kase, Lorena, Paxton,
Rare Disease affects 1 in 10 Americans and includes over 7,000 known diseases. Currently there are no cures and very few treatments. However, our organization and other nonprofits are innovating and moving forward research. These efforts not only have implications
Happy 3rd Birthday to Porter Heatherly! A very special thank you to the Heatherly family for their amazing efforts in honor of Porter’s 3rd Birthday! The Heatherly family was told that Porter might not live to see his 2nd birthday,
The Cure GM1 Foundation is excited to announce our very first invitation only event is coming in November! The details are being determined now. The event will take place here in California. The event is so special, we’re only allowed
It’s official the Franchise Tax Board of California also granted nonprofit status to the Cure GM1 Foundation! We already had the 501(c)(3) status back in April, but this will ensure our organization is exempt from California franchise taxes too!