While it may seem quiet at times, there is still a lot going on with our small and mighty nonprofit! Our Cure GM1 support base is growing and we are extremely grateful. Although we don’t wish for anyone to have
January 2017 was the Cure GM1’s biggest month in the history of the foundation with over $375K donated! Even with such an amazing month, we still need help. Medical research is very expensive. Money is not everything in life, but
January tends to be a relatively quiet month for Cure GM1. Let’s update you on what could be Cure GM1’s best year yet. December was an excellent month in terms of donations, and November and October were off the
Let’s bid 2016 goodbye and work towards making 2017 the year of a GM1 Gangliosidosis human clinical trial! It’s been an amazing year for Cure GM1 in 2016! When 2016 began we had no idea what the future would hold.
In Memoriam Sadly, November has only just begun and two children, Maite and Porter passed away this month after battling infantile GM1 Gangliosidosis, the most severe form of GM1. Read the touching quotes from their families below. Our hearts go
What an Amazing Month! The Cure GM1 Tongue Twister Challenge was launched and we’ve had an amazing response from many friends and supporters spreading awareness. Please see the video and page about the challenge. The challenge is going on
Read the latest updates from the Cure GM1 Foundation below! Porter’s 4th Birthday Fundraiser in Auburn, Alabama The Heatherly family have been such amazing advocates for their son Porter who has infantile GM1. We are so truly grateful for their
Intravenous Gene Therapy Update AMAZING news! We recently received a detailed update on the progress of the Auburn/UMass GM1 intravenous (IV) gene therapy research program. Work is truly active towards the creation of a clinical trial in human children! The
The Cure GM1 Foundation welcomes Dee King in the role of Family Liaison. Dee’s daughter Fiona passed away on December 23, 2015, four and a half years after the devastating diagnosis of infantile GM1. Dee has graciously volunteered for Cure
Reminder that we have a parent conference call tonight 5/16/16 at 6PM PST. The conference call access and directions will be sent directly to those who contact us. You can use the contact form to request the directions.