Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers from GM1 Type 2. Lenka was born on August 18, 2004. Lenka’s early childhood proceeded normally and her sociable and bold personality emerged. At the
Little Ian was just recently diagnosed this year with Type 1/infantile GM1. Ian is a little fighter and his family has joined the fight for a cure! To donate in honor of Ian, go to CrowdRise to see his campaign.
Paxton, a first and only child, was born a seemingly healthy baby boy on Feb. 16, 2012. When he was 6 months old, his parents noticed problems with his vision and that he was a bit behind with sitting and rolling.
Born: Sat., Oct. 13, 2012 Died: Sat., Apr. 18, 2015 A precious angel returned to live with his Heavenly Father on April 18, 2015. Zac fought a courageous battle against GM1 Gangliosidosis. Zac was born on October 13, 2012 to Brett
GM1 Gangliosidosis is not specific to a particular race, region, class, gender, or age group. While GM1 is considered a rare disease, it’s prevalence is likely underestimated. Some children may never properly be diagnosed, tragically perishing before the age of