Sweet Iris’ Story
About Sweet Iris Iris was diagnosed with Juvenile GM1 when she was 5 and a half years old. Her…
About Sweet Iris Iris was diagnosed with Juvenile GM1 when she was 5 and a half years old. Her…
Our Journey to Diagnosis By Kylie Harrison “Two of your children have a fatal, untreatable disease. They are dying.” …
Like most people, Emily Blu loves spending time with her friends, family, and online. She likes fishing and country music….
Please watch Clara’s family’s video: This is a wonderful article about Clara and her family’s fundraising efforts. Read the story…
From Cas’ Mother: Cas was a beautiful, happy boy. He had beautiful eyes and hair and a beautiful smile. Everyone…
Sofia, developed up to 1 year and 8 months as a normal child, regression began at 1 year and 9…
Nastya’s Story Until the age of one year old, Nastya grew and developed like an ordinary child. At the age…
DONATE We are living a parents worst nightmare. Our sweet son Darian, was recently diagnosed with a very rare and…
Elena was diagnosed at age 23 and is from Russia. She is the rare of the rare and suffers from…
Lindsay is kind and humorous. Her favorite movie is Tombstone. She loves theme parks and time with her family. She…