Jan. 2018 Cure GM1 Update

Goodbye 2017 and Welcome 2018!

Thank you to all those who helped make 2017 the most successful year yet for our small nonprofit.  2017 was truly exceptional and we are truly grateful to all those who worked to hard to make it a success and to help advance potential treatments and to help Cure GM1!

This collage only represents a portion of all of the amazing efforts in 2017 on behalf of the Cure GM1 Foundation. So many wonderful people contributed to advance our mission to help develop a cure or treatment for GM1 Gangliosidosis. It’s truly a monumental task for families whose children are suffering from GM1 to also contribute through fundraising. It is with extreme gratitude that we thank those families and all those who fight with us for continued progress. We are building a foundation to drive change forward. Please continue to help support this noble mission in 2018 and beyond.

The efforts were varied and truly thankful!

Please Help in 2018

Consider a simple birthday fundraiser in 2018!  Everyone has a birthday.  Click the image to learn how to make a Facebook fundraiser to help Cure GM1.

This foundation exists solely due to the incredible generosity of families, friends, colleagues, and donors who dare to believe a cure for GM1 is possible.   Time is always the enemy of those suffering from progressive and degenerative diseases such as GM1 Gangliosidosis.  We need help in order to be able to continue to fight the good fight.

In 2018, please make a special resolution to consider holding a fundraiser.  Just let us know how we can help or what you have planned.  The events can really be anything and only your imagination is the limiting factor.

Participate in the Rare Carousel of Possible Dreams in February

Be a rider for Cure GM1 and participate in this virtual event!  You don’t have to be local to join!

The RARE Carousel is a unique partnership between Festival of the Children Foundation and Global Genes that provides an exciting and innovative way for RARE organizations to raise funds, cultivate new donors, and increase awareness. The Cure GM1 Foundation is excited to be a participating organization in the 2018 RARE Carousel!

OUR DREAM: Fund a GM1 Phase I/II Clinical Trial

OUR GOAL for this fundraiser: $25K

HOW?

We are building a team of riders to help us achieve our dream and we want YOU to join us!

As a rider of The RARE Carousel of Possible Dreams, your participation is key to the success of our fundraising campaign. With a team, you will expose the Cure GM1 Foundation to a wider audience and help raise funds that will bring our possible dream to life.

Over the course of the campaign, you will use an online fundraising platform to reach out to friends, family, co-workers and businesses to achieve your personal fundraising goal. It is a fun and easy way to get the word out about the mission of the Cure GM1 Foundation, share why the cause is important to you and give your personal network an opportunity to donate directly towards a high-impact program.

DO I HAVE TO RIDE A CAROUSEL?

Riding a Carousel is not a requirement! This is a virtual fundraiser. But it’s a great excuse to visit a carousel at your local shopping mall or park and jump on our horse. Take pictures and post on social media along with the link to your fundraising page. Make a bigger footprint by bringing your friends and family to join you on the carousel. This is a great event just to wear a t-shirt even and make some posts on social media about your fundraising and support.

Just contact us to let us know that you would like to join and more details are forthcoming!

GM1 Patient Network and Invitae/Patient Crossroads Platform

Believe it or not, the simple act of providing information on a platform trusted by bio techs is a powerful tool.  We must show that GM1 patients are organized and care about joining together to provide information to help plan clinical trials.  The GM1 Patient Network is a collaborative effort to build a comprehensive anonymized patient registry.  If you have not joined already, please fill out this NEW web site link:  https://connect.patientcrossroads.org/?org=gm1

 

Jan. 2018 Cure GM1 Update

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