When: September 2017
Where: Wherever You Want
Why: Raise Money and Awareness for GM1 Gangliosidosis
How does this challenge work?
Individuals will register for a team sponsored by a child with GM1, then earn points for that team anytime during the month of September in the ways explained in the table below. The team with the most points on the last day of September is the winner. We will then post a special story about that team and child in October. The only requirement for joining a team is sending Marilee an email with your name/team name, all other action items are highly encouraged, but not required 🙂 The winning team will be a reflection of the points earned in the following ways:
|Action||Number of Points||Details|
|Register||20 Points per shirt||Sign up by buying a shirt and sending an email to Marilee@curegm1.org with your name and team name.|
|Donate||2 Points per Dollar Donated||Donate any amount at crowdrise.com/curegm1-run-walk-challenge sometime during September and note your team name in the comments.|
|Distance||1 Point per Reported Mile||Report any mile(s) you run or walk during September by posting on Facebook, Twitter or Instagram something like “I just ran 1 mile for #CureGM1TeamAllison”. Be sure to use #CureGM1 + your team name.|
|Post a Picture||1 Point per picture post,
2 points if pic includes the team t-shirt.
|Post a picture of each run or walk during September on Facebook, Twitter or Instagram. The Team T-shirt is encouraged as part of the photo. Use #CUREGM1 + your team name. (i.e. #CUREGM1TeamEliEvan)|
Here is a link to view all the T-shirts – represent.com/store/cure-gm1-foundation
|GM1 Child||Team Name||T-Shirt Link|
|Aiden from Ohio, USA||TeamAiden||Adults – represent.com/cure-gm1-team-aiden|
|Eli and Evan from Arizona, USA||TeamEli&Evan||Adults – represent.com/cure-gm1-team-eli-and-evan|
|Louis from Germany||TeamLouis||Adults – represent.com/cure-gm1-team-louis|
|Florence from Manchester, United Kingdom||TeamFlorence||Adults – represent.com/cure-gm1-team-florence|
|Iris from California, USA||TeamIris||Adults – represent.com/cure-gm1-team-iris|
|Allison – In loving memory – May 1985 – Nov 1985
|TeamAllison||Adults – represent.com/cure-gm1-team-allison|
|Luke and Isaiah from Idaho, USA||TeamLuke&Isaiah||Adults – represent.com/cure-gm1-team-luke-and-isaiah|
|Cooper Matthew Richards – In loving memory – July 2013 – Jan 2017
From Massachusetts, USA
|TeamCooper||Adults – represent.com/cure-gm1-team-cooper|
|Joey and Oliver from Wisconsin, USA||TeamJoeyOliver||Adults – represent.com/cure-gm1-team-joey-and-oliver|
|Madilyn Rose Perry from Pennsylvania, USA||TeamMadi||Adults – represent.com/cure-gm1-team-madi|
|Clara Bragg from Alabama, USA||TeamClara|| Adults –
Frequently Asked Questions
Is there any minimum number of people that need to register for a team? Is there a limit? Anyone can join a team and there is no limit or minimum number of registrants per team.
How do I register? Purchase a T-shirt (links above) for the team of your choice. Then send an email to Marilee@CureGM1.org with your name and team name.
What if the GM1 child I would like to support is not on this list? Send an email to Marilee@CureGM1.org with your name and the child’s name with GM1 that you would like to include. A team and individualized T-shirt will then be created for that child within 24 hours.
How do I donate? Donate at crowdrise.com/curegm1-run-walk-challenge and note your team name in the comments.
Can I send a check instead of donating on Crowdrise? If you prefer to send a check, that is fantastic as well. Send to Cure GM1 Foundation, PO Box 6890, Albany, CA 94706 and include a note “run/walk challenge” along with your team name.
Do I need to donate an amount for each mile I run or walk during September? Any donation given is a free will donation and doesn’t need to be tied to the amount of miles you run or walk, although pledging an amount per run is welcome.
How do I report any miles I walk or run during September? Report any mile(s) you run or walk during September by posting on Facebook, Twitter or Instagram “I just ran 1 mile for #CureGM1TeamAllison”. Be sure to use #CureGM1 + your team name.
If I am not on social media, how do I report my miles or get points for posting a picture? Send an email to Marilee@CureGM1.org any time during September 2017 to report miles or send pictures when you walk or run.
Do I need to be wearing a team shirt in my picture, for the post to count as a point? No, but wearing a team shirt during your walk or run is encouraged as it helps brings more awareness. You can also make a simple CureGM1 sign to walk with or wear if you like.