Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers from GM1 Type 2. Lenka was born on August 18, 2004. Lenka’s early childhood proceeded normally and her sociable and bold personality emerged. At the
Little Ian was just recently diagnosed this year with Type 1/infantile GM1. Ian is a little fighter and his family has joined the fight for a cure! Just before Ian turned 1, he was diagnosed with development delay. His family
Wow! Many families and supporters have come together recently to help Cure GM1! We’re so incredibly grateful to you all! Truly, thank you from the bottom of our hearts! This foundation is for all those affected by this devastating
A Rare Disease Partnership Through a partnership with Global Genes and two other rare disease nonprofits, the Grace Wilsey Foundation, and the KCNQ2 Cure Alliance, we were able to organize a pre-release benefit screening of Disney/Pixar’s most recent feature film The Good Dinosaur at Pixar Animation
A very special thank you to the Heatherly family for their amazing efforts in honor of Porter’s 3rd Birthday! The Heatherly family was told that Porter might not live to see his 2nd birthday, let alone his 3rd. To celebrate
The combination of art and charity resulted in an amazing fundraising event for a wonderful cause! In a single evening, the Sweet Iris Art Auction of over 175 works of art resulted in more than $100K being contributed directly to
We are extremely excited to announce that Gloria Chien, an amazing and extremely accomplished pianist will be performing this summer in a benefit concert for our foundation at a private residence in Palo Alto. The event will be RSVP only.