From Carla, Anna Laura’s Mother:
Hi, I’m Carla, Anna Laura’s mother. Anna Laura is also affectionately called Laurinha ❤️. We are from São Paulo, Brazil. Thank you for welcoming us. It’s great to meet families and angels who are with us in the same battle. ❤️ Laurinha was diagnosed at 1 years and 7 months, but at 8 months we noticed delays. At one year old, she had her first seizure. The investigations began after an ophthalmological examination. I was desperate. A cherry red spot was one of the first signs. Further testing yielded a diagnosis of GM1 Gangliosidosis. We live one day at a time with the hope of a possible cure and treatment . This is my Princess Laurinha.
Anna Laura passed away in May 2019.