From Augusto’s Father (sent prior to Augusto’s death)
My son’s name is Augusto Barreiros Ribeiro, he was diagnosed with GM1 at 3 months old . He was born on 01/21/2014. He has been in the ICU in Brazil for many months with no hope! I hope for the day that there will be a treatment or a cure GM1 and for my son… Thank you for all you doing for find a cure for GM1!