Lily’s Story
From Lily’s Aunt My niece Lily Faith Tinney had a very severe and aggressive form…
Maykel’s Story
From Maykel’s Mother Maykel Cal Oliveira was born on 12/20/2014. He was diagnosed with GM1…
Rayan’s Story
From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…
Augusto’s Story
From Augusto’s Father (sent prior to Augusto’s death) My son’s name is Augusto Barreiros Ribeiro,…
Joey’s Story
From Joey’s Father Josiah (Joey) was born on March 2, 2014, a perfectly healthy baby…
Reece’s Story
From Reece’s Father Reece Lee William Wells Reece was diagnosed in March 1994 by Dr…
Gui’s Story
From Gui’s Mother “The value of things is not in the time they last, but…
Taylor, Kase, and Kolt’s Story
From Taylor, Kase, and Kolt’s Mother Three of my five children were and are affected…
Keeton’s Story
From Keeton’s Father Keeton Elder, Keeton had a normal birth and enjoyed playing baseball and…
Aimee’s Story
From Aimee’s Mother My little girl was 9 months old when she was diagnosed in…