Allison’s Story
From Allison’s Mother Our sweet Allison Layne was born May 22, 1985 in Tyler, TX….
Niamh’s Story
From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….
Tiffany’s Story
From Tiffany’s Mother Tiffany is my beautiful daughter, who was diagnosed when she was 10….
Candela’s Story
From Candela’s Grandmother My name is Silvia Fernández. I am a grandmother of three beautiful…
Saubhav’s Story
From Saubhav’s Father My child’s name is Saubhav Singh. He was diagnosed at age two…
Anisa’s Story
From Anisa’s Mother My last child has GM1. I also have two girls and a…
Cody’s Story
From Cody’s Mother Our son Cody Butcher is now 3. He was born on the…
Lydia’s Story
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…
Armand’s Story
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
Lois’ Story
From Lois’ Mom: Lois was born in 2006. She was the first girl in the…