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Home / Blog - Page 11

Blog

Lindsay’s Story

April 1, 2020February 1, 2024

Lindsay is kind and humorous. Her favorite movie is Tombstone. She loves theme parks and…

Read More Lindsay’s StoryContinue

Robert’s Story

January 1, 2020November 26, 2023

  Robert Ernest Mitchell Messer  suffered from infantile GM1 and passed away on July 30,2019

Read More Robert’s StoryContinue

Stella and Finya

December 31, 2019November 14, 2023

  Beautiful Stella and Finya passed away within one day of one another. Finya passed…

Read More Stella and FinyaContinue

Tyson’s Story

November 2, 2019November 26, 2023

Our dear little Tyson was born on September 15, 1989 and lived a short 16…

Read More Tyson’s StoryContinue

James’ Story

November 1, 2019November 26, 2023

From James’ Mother: James was diagnosed with GM1 Gangliosidosis Type 2 Juvenile on November 7,…

Read More James’ StoryContinue

Eve’s Story

July 29, 2019November 26, 2023

  From Eve’s Mother We live in Ukraine in the Odessa region. Eve was born…

Read More Eve’s StoryContinue

A Newborn Screening Assay for GM1 Gangliosidosis, Gelb Laboratory, University of Washington

July 17, 2019November 26, 2023

Tandem Mass Spectrometry Assay of Beta-Galactosidase for Multiplex Newborn Screening of GM1 Gangliosidosis Michael H….

Read More A Newborn Screening Assay for GM1 Gangliosidosis, Gelb Laboratory, University of WashingtonContinue

Sing Me a Story

July 16, 2019December 2, 2023

We are pleased to announce a special nonprofit partnership with the Sing Me a Story…

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Pia’s Story

June 18, 2019November 26, 2023

From Pia’s Mother: Hello, my name is Stefany Sanchez.  I am 23 years old.  My…

Read More Pia’s StoryContinue

Submit Your Story

June 14, 2019November 14, 2023

Cure GM1 Foundation Photo and Story Release By voluntarily providing photos and media to Cure…

Read More Submit Your StoryContinue

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  • About GM1 Gangliosidosis
    • About
      • About GM1
      • Disease Overview PDF
      • Clinical Disease Overview Video
      • The Cause
      • Who Gets GM1
      • Incidence of GM1
      • History of GM1
      • Life Expectancy
      • Subtypes of GM1
    • Treatments and Research
      • Advancements and Research
    • If Your Loved One Has GM1
      • Join a Natural History Study
      • Give Samples to the GM1 Biobank
      • Participate in Data Sharing
      • Contact Us
  • How to Help
    • Take Action
    • By Donating
      • Donate
      • Paypal Giving Fund
      • Crypto
      • Contact Us
    • Read and Share Our Stories
      • Community Stories
      • Watch Family Videos
      • Share Your Story
    • For Researchers
      • Grants Overhead Policy
    • By Fundraising
      • See Our Fundraising Ideas
      • Fundraise for CureGM1
        • Use Our Fundraising Manual
        • GoFundMe
        • JustGiving
        • Facebook
      • Used Car Donation
    • Participate in Our Events
      • GM1 Awareness Day
      • Do It for GM1
      • Rare Disease Day
      • Annual Conference
    • By Shopping
      • GM1 Store
      • RaiseRight
      • Buy Chocolate
      • eBay
    • Engage with Cure GM1
      • Contact Us
      • Subscribe to the Newsletter
      • Join the Cure GM1 Parents Facebook Group
      • Join the Friends of Cure GM1 Facebook Group
    • Subscribe to Our YouTube Channel
  • What We Do
    • About the Foundation
      • Mission Statement
      • Board Members and Staff
      • Scientific and Business Advisors
      • Informational Flyer
    • Newsletters
      • View Newsletters
      • Subscribe to the Newsletter
    • Advancements / Research
      • Enzyme Replacement Therapy Project
    • Guide Families
      • Resources For GM1 Families
      • Learn About Data Sharing
      • Contact Us / Have Questions?
    • Drive Progress and Research
      • FDA Engagement, EL-PFDD
      • Voice of the Patient Report
      • Caregiver Preferences Study