Rayan’s Story
From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…
From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…
From Maykel’s Mother Maykel Cal Oliveira was born on 12/20/2014. He was diagnosed with GM1…
From Lily’s Aunt My niece Lily Faith Tinney had a very severe and aggressive form…
From Cody’s Mother Our son Cody Butcher is now 3. He was born on the…
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…
From Anisa’s Mother My last child has GM1. I also have two girls and a…
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
Scientific researchers Cat Lutz and Aamir Zuberi at the Rare Disease Center of the Jackson…
Florence has late infantile GM1. She was diagnosed when she was 2. She has real…
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…