Lily’s Story
From Lily’s Aunt My niece Lily Faith Tinney had a very severe and aggressive form…
Cody’s Story
From Cody’s Mother Our son Cody Butcher is now 3. He was born on the…
Lydia’s Story
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…
Anisa’s Story
From Anisa’s Mother My last child has GM1. I also have two girls and a…
Armand’s Story
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
2019 The Jackson Laboratory – Natural History Studies of Two GM1 Mouse Models
Scientific researchers Cat Lutz and Aamir Zuberi at the Rare Disease Center of the Jackson…
Florence’s Story
Florence has late infantile GM1. She was diagnosed when she was 2. She has real…
Sara’s Story
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…
Maria Eduarda’s Story
Maria Eduarda was born on 07/07/2015. She was diagnosed at one year of age with…
T-Jay’s Story
In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1…