Happy 18th Birthday, Sweet Iris
Happy 18th Birthday, Sweet Iris An update on Sweet Iris as she heads into adulthood,…
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Daxton’s Story
Daxton’s Story, By His Mother A GM1 Infantile (Type 1) Story(Published Feb. 20, 2026) “GM1…
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A Quickstart For GM1 Gangliosidosis
What Is GM1 Gangliosidosis? GM1 Gangliosidosis is a rare, inherited genetic disorder that affects the…
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February 2026 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
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2025 Cure GM1 Impact Report
2025 Cure GM1 Impact Report Check out what you helped us accomplish in 2025 All…
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January 2026 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
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Nate’s Story
Nate’s Story, By His Mother A GM1 Late-infantile, Type 2A Story(Dec. 26, 2025) “I didn’t…
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December 2025 Cure GM1 Catalyst
As the year comes to an end, we remain focused on creating connection by keeping our rare disease community informed of advocacy opportunities, research news and community updates. Join us in learning more about our efforts to push for a cure for GM1 gangliosidosis.
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Kinley and Kennedy’s Story
Kinley and Kennedy’s story, by their father “The girls recently hit their 5-year post Gene…