Denisa’s Story
DENISA’S STORY My Story “Hi, my name is Dana. I have a daughter with Juvenile…
Peyton’s Story
PEYTON’S STORY My Story “It has completely changed our family. We are closer than ever…
Luke & Isaiah’s Story
LUKE & ISAIAH our Story “Luke and Isaiah faced this horrible disease together, dying just…
Cure GM1 May 2024 Catalyst
Welcome to our special edition newsletter for International GM1 Awareness Day! We’re also excited to announce upcoming events and achievements. Stay updated on news pertaining to GM1, rare diseases that could impact our community and prepare for summer with our fundraising
Sanofi Press Release: AMETHIST Trial Discontinued
We regret to inform you that in Sanofi’s quarterly press release issued today that the…
Cure GM1 April 2024 Catalyst
Cure GM1 Catalyst April’s edition celebrates the growth of our global Cure GM1 community with the introduction of new members who share our passion and dedication. As we approach the highly anticipated GM1 Day, our collective efforts in legislative advocacy and partnerships with leading biotech firms are accelerating progress in GM1 research.
The March 2024 Cure GM1 Catalyst
2024 Cure GM1 Virtual Conference We are excited to start planning our annual conference for…
2023 Cure GM1 Impact Report – Annual Update And Beyond
Our summary of impact in 2023 is now available to read. After some time reflecting, everyone…
Iris’ Story from Her Brother’s Perspective
As told by Iris’ brother. How has GM1 gangliosidosis affected your life? GM1 Gangliosidosis is…
Marley’s Story
How did you feel when your child received a diagnosis of GM1? Early on we…