Jessica’s Story
How did you feel when you received a diagnosis of GM1? When I got my…
Violet’s Story
The Law Family announces with the sweetest sorrow, the passing of their beloved daughter, Violet…
Asia’s Story
This is the story of Asia, a little princess born on December 6, 2020. Asia…
Luigi’s story
Hi friends, my name is Luigi. I’m Italian, and I’ll be 3 in October. Unfortunately…
Diego’s Story
Diego was born on June 29, 2021 in Imola, a small town in Italy. We…
Strahinja’s Story
Hello, I’m Strahinja, 19 months old from Switzerland. I have two older brothers who are fortunately…
Theodora’s Story
Theodora was born in October 2021. She is a very happy and smiley baby. She…
Camden’s Story
Camden is a happy child. He loves people. Hearing certain names lights his face up….
Sweet Iris’ Story
About Sweet Iris Iris was diagnosed with Juvenile GM1 when she was 5 and a…
Kinley and Kennedy’s Story
Our Journey to Diagnosis By Kylie Harrison “Two of your children have a fatal, untreatable…