Camden’s Story
Camden is a happy child. He loves people. Hearing certain names lights his face up….
Camden is a happy child. He loves people. Hearing certain names lights his face up….
About Sweet Iris Iris was diagnosed with Juvenile GM1 when she was 5 and a…
Our Journey to Diagnosis By Kylie Harrison “Two of your children have a fatal, untreatable…
Like most people, Emily Blu loves spending time with her friends, family, and online. She…
Please watch Clara’s family’s video: This is a wonderful article about Clara and her family’s…
From Cas’ Mother: Cas was a beautiful, happy boy. He had beautiful eyes and hair…
Sofia, developed up to 1 year and 8 months as a normal child, regression began…
Nastya’s Story Until the age of one year old, Nastya grew and developed like an…
DONATE We are living a parents worst nightmare. Our sweet son Darian, was recently diagnosed…
Elena was diagnosed at age 23 and is from Russia. She is the rare of…