Kinley and Kennedy’s Story
Our Journey to Diagnosis By Kylie Harrison “Two of your children have a fatal, untreatable…
Emily’s Story
Like most people, Emily Blu loves spending time with her friends, family, and online. She…
Clara’s Story
Please watch Clara’s family’s video: This is a wonderful article about Clara and her family’s…
Cas’ Story
From Cas’ Mother: Cas was a beautiful, happy boy. He had beautiful eyes and hair…
Sofia and Stephanie
Sofia, developed up to 1 year and 8 months as a normal child, regression began…
Nastya’s Story
Nastya’s Story Until the age of one year old, Nastya grew and developed like an…
Darian’s Story
DONATE We are living a parents worst nightmare. Our sweet son Darian, was recently diagnosed…
Elena’s Story
Elena was diagnosed at age 23 and is from Russia. She is the rare of…
Lindsay’s Story
Lindsay is kind and humorous. Her favorite movie is Tombstone. She loves theme parks and…
Robert’s Story
Robert Ernest Mitchell Messer suffered from infantile GM1 and passed away on July 30,2019