Reece’s Story
From Reece’s Father Reece Lee William Wells Reece was diagnosed in March 1994 by Dr…
Saubhav’s Story
From Saubhav’s Father My child’s name is Saubhav Singh. He was diagnosed at age two…
Rayan’s Story
From Rayan’s Mother My son’s name is Rayan. He was born Tuesday, January 13, 2015…
Aimee’s Story
From Aimee’s Mother My little girl was 9 months old when she was diagnosed in…
Tiffany’s Story
From Tiffany’s Mother Tiffany is my beautiful daughter, who was diagnosed when she was 10….
Niamh’s Story
From Niamh’s Mother My 10 year old daughter Niamh started having seizures at age 2….
Maykel’s Story
From Maykel’s Mother Maykel Cal Oliveira was born on 12/20/2014. He was diagnosed with GM1…
Allison’s Story
From Allison’s Mother Our sweet Allison Layne was born May 22, 1985 in Tyler, TX….
Lily’s Story
From Lily’s Aunt My niece Lily Faith Tinney had a very severe and aggressive form…
Candela’s Story
From Candela’s Grandmother My name is Silvia Fernández. I am a grandmother of three beautiful…