Gui’s Story
From Gui’s Mother “The value of things is not in the time they last, but…
Joey’s Story
From Joey’s Father Josiah (Joey) was born on March 2, 2014, a perfectly healthy baby…
Lydia’s Story
From Lydia’s Mother Lydia was born, apparently healthy, a normal pregnancy. She was born with…
Anisa’s Story
From Anisa’s Mother My last child has GM1. I also have two girls and a…
Armand’s Story
From Armand’s Mother My son Armand Hayes was diagnosed in 2011. We are doing all…
Cody’s Story
From Cody’s Mother Our son Cody Butcher is now 3. He was born on the…
Maria Eduarda’s Story
Maria Eduarda was born on 07/07/2015. She was diagnosed at one year of age with…
Sara’s Story
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…
T-Jay’s Story
In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1…
Florence’s Story
Florence has late infantile GM1. She was diagnosed when she was 2. She has real…