Sara’s Story
A Message from Sara’s Mother Hello Friends and Families We are an affected family from…
T-Jay’s Story
In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1…
Maria Eduarda’s Story
Maria Eduarda was born on 07/07/2015. She was diagnosed at one year of age with…
Florence’s Story
Florence has late infantile GM1. She was diagnosed when she was 2. She has real…
Lois’ Story
From Lois’ Mom: Lois was born in 2006. She was the first girl in the…
Althea’s Story
Althea was born on 23rd September 2016, a beautiful 6lb 8oz baby girl. Thea was…
Aiden’s Story
Sweet Boy Aiden Aiden is 5 years old now. Things started off great then at…
Paola’s Story
Una Bellisima Bambina Paola is a beautiful child born on June 29, 2013. She was…
Joe’s Story
A special boy that fought to the end Joe was born 4 weeks early by…