From Rayan’s Mother
My son’s name is Rayan. He was born Tuesday, January 13, 2015 at 2:00am, and he weighed 4 lb. 6 oz. He was born early at 35 weeks. At the age of 3 months old, he had jaundice, some hearing loss, low body temperature, and club foot in age of 3 months. After breathing problems and hospitalizations, there were no answers. Eventually, a doctor did a blood test and diagnosed Rayan with infantile GM1.