Milo’s Story
Milo’s Story Milo passed away from infantile GM1 (Type 1) on July 20, 2026. Below,…
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Ayesha’s Story
Ayesha’s Story Ayesha is the only child of a family who has already endured heartbreaking…
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Ravi’s Story
Ravi’s Story Ravi passed away from infantile GM1 (Type 1) on March 4, 2026. Below,…
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Joey, Oliver & Dominic’s Story
Maria Bacon waves as she drives past two teenagers on their bikes, loaded with fishing…
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Frieda’s Story – An Update
How is Frieda doing right now with her symptoms, the progression of the disease, and…
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Batul’s Story
Batul’s Story Batul passed away from infantile GM1 (Type 1) on March 23, 2026. Below,…
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Florence’s Story (Update)
Florence’s Story: An Update Back in 2019, we shared the story of Florence, who was…
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Leonor’s Story (Update)
Leonor’s Story: An Update Back in 2019, we shared the story of Leonor, who was…
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Reece’s Story
Reece’s Story, By His Mother A GM1 Type 2 Story(Published April 1, 2026) “Reece, we…