In these images, T-Jay is nearly 18 months old. He was diagnosed with GM1 Type 1 /Infantile, 3 weeks before Xmas 2017. It’s been a rocky road with emotions. T-Jay is a happy little boy. He can’t walk his muscles are very weak. He has started to deteriorate as in his fits have started getting worse and he stops with his breathing sometimes. He is on oxygen.
Sadly, sweet T-Jay passed away on Friday June 29th, 2019 at 6:30am in the UK after a brave fight against GM1 Gangliosidosis.